Week in Review: Weeks 64-67

Wow, I’ve essentially lost the month of May. May was the bulk of my radiation treatments – I still have seven left to go so they’re reaching a little into June as well, but hopefully I’ll be able to reclaim some of June for myself. I’ve been too tired to do much of anything, but here’s what I’ve been up to for the past few weeks.

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I photographed our 5k Jack’s Run for Autism up in Port Washington. It was like The Windiest Day EVER. We couldn’t hang signs or put out balloons to mark the course or anything. But the runners didn’t seem to mind. Those athletic types don’t let *anything* stop them. Respect.

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And then I went for my first chemo treatment. Scary. They kept referring to it as an “all day treatment.” SCARY. But in reality, it was a lot of prep, counseling, two hours of IV hydration and anti-nausea meds before and another two hours after…and the actual chemo was only one hour. But it *was* a long day of not really knowing what to expect so I had my bag well-stocked with activities, snacks, water, super soft kitty blanket, book, etc.

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I was anxious all day waiting to feel awful…but that really never happened. I felt *queasy* for the next week or so but never really nauseous. I will be repeating this procedure on Monday. Hopeful for same outcome.

Ugh. This dress. Not good. It went back to Gwynnie Bee immediately. You win some, you lose some.

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I brought some lilacs in from outside our office door. They smelled so so so so good. And I haven’t killed my succulent terrarium plants yet! Yay Me!

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Caleb is such a sneaky-peeker.

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I found a rock on the beach that looks like a heart. Or a butt. You choose.

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Ahhhhh. I need more of these.

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Don’t work too hard, Caleb.

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Sunrise outside my door.

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How fun is this beachy cake? I just looked, I did not touch.

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A family from the school brought me this card. They’re having their own struggles and yet they took their time to do this for me. HUGS TO YOU.

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My kooky kid.

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Her kooky mom.

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Sunrise out my girlfriend’s door.

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I dog-sat last weekend. They’re a tough pair to handle. Not.

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We had lots of lovely porch time.

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Some things never change.

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Ruh-roh. I killed one of the succulents. It rotted away. I think I overwatered. I put a turtle in its place. That will be harder to kill.

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Here is a pic of me at 10. It was part of a video I just saw for the first time, so I apologize for poor quality due to screen grab. I guess my father filmed this back in 1970? Isn’t it weird to see pictures of yourself from the past (well, duh, all pictures are from the past but you know what I mean) that you have No Recollection of? You know it’s you cuz you can SEE you, but. I have no memory of this day or this dress or even my father having a movie camera! And this is funny, in 1970 girls were not yet allowed to wear pants to school. But we were wearing dresses this short (you can’t see the groovy white Jan Brady knee socks I had on but they’re there). How did THAT make sense??

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For some reason this “I Am the Champion” muscle man bicep pose was my go-to photo pose around that age. Who knows. That’s my sister, cheery in yellow.

And there you have it. This month was a LOT of laying around, staying close to home. Hopefully I’ll be able to venture out a little more this month. Fingers crossed!

On another note, I have STILL not switched out my winter clothes for summer! It’s been just cool enough that I haven’t needed to. Maybe this weekend. I kind of think that was the same last sentence from my LAST Week in Review post!

xoxo Bettye

Week in Review: Week 62

Hey, my title rhymes! I love that 🙂

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My week started with a super nice day out with friends. We headed out east to Peconic River Herb Farm in Calverton, which is one of my very favorite places to visit on Long Island. Not only do they have an abundant sales area of anything you could want to plant in your garden or yard, they have all these lovely little spots to enjoy or sit and appreciate the quiet and nature. There’s a little wooden rocking swing thing for two down by the river, I could sit there for hours.

I dressed for walking in my favorite Avenue leggings, grey long-sleeved tee, and super soft and cushy Adidas trainers…and instead of my usual grey hoodie, I wore a very light oversized button down blouse from Walmart. You can’t really tell from the pic but it’s a narrow vertical blue and white stripe. I’d originally gotten it to wear under cardigans, but the fabric is too drapey which makes the collar and neckline all loosey-goosey and a fail. But I finally found a use for it here.

Here are some sights from around the farm:

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Strolling in the the warm sunshine made us hungry so we went to this super nice spot in Riverhead…if only I could remember the name of it (!), I’ll fill it in later when my girlfriend reminds me in case anyone wants to go. It was just an average looking roadside pizzeria…but out back was so so lovely. It, again, is right on the river, and there’s a soft grassy lawn with charming red picnic tables and a never-ending show of ducks and geese and swans drifting by…and sometimes marching past to get to anyone who ignores the signs and FEEDS THE BIRDS.

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That was such a nice day and way to start my week, because it was sort of downhill from there. Ugh.

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Two days in a row of dead car battery.

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An unpleasant set-up thing for my radiation treatment which starts this coming week and sadly, did NOT include “Easy Air.” I think all medical visits should include sweet air like you get at the dentist. Why is that not a thing?

I got a bit of a runaround this week from the cancer treatment center…appointments were made without my knowledge, a 7-hour chemo treatment was scheduled without anyone talking to me first, we’ve never even discussed the chemo schedule At All, you can’t just spring that on me! One nurse (in the endless stream of phone calls) made me think my whole protocol was going to be vastly different from what we *had* discussed…and the doctor was unreachable while away on vacation. Boo. It was an anxiety-filled, non-fun roller-coaster week, medically speaking. But that week is behind me, I have a consult with the dr first thing Monday morning and hopefully all will be sorted out.

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On a brighter note, Caleb is feeling SO well. He was treated to a vet visit and now has more pills than me but he has not scratched or bit at his skin in days and his hips seem stronger and more pain-free and he’s like a FIRECRACKER. So I’m trying to up my walking game so he’s not jumping out of his skin…but I overdid it on my bad heel so that was in A Lot of Pain for a couple days.

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The Big Boss treated us to some lovely daffodils (will take a better picture this week while they’re blooming) for Administrative Professionals Day. That was very thoughtful.

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I stopped into Avenue to pay my bill, repeating to myself as I walked from car to store, “DON’T LOOK AT THE CLOTHES, DON’T LOOK AT THE CLOTHES.” Sigh. I’ve been loving this dress from the website (WHY DO I KEEP LOOKING AT THE CLOTHES???) and it was hanging front and center when I entered the store, so. Come on. I’m only human. Sadly the largest size they had in stock was more snug than I like around my belly&hips (helly? bips?) so it was a pass and I managed to just pay my bill and escape with no new purchases.

Friday I was back to the podiatrist where I got more cortisone in my heel (which did not work last week at all) which made me very jittery so my evening plans were dashed. In the meantime he’s sending me for an MRI because he suspects a tear in a ligament. And what does one do for a ligament tear in the heel? One wears something called a WALKING CAST. For 6-12 weeks. Yay!

I hate that I’ve become this person that talks about her aches and pains and maladies all the time. I remember saying to someone when I first went into the hospital back in February that I need a new hobby so I have something else to focus on. I just haven’t found it yet. I’d love to spend more time blogging but am still looking for an Instagram husband (or wife, I’m not picky) to help me shoot more often.

I was thinking of doing a “what’s in my closet” post as I change out winter for summer, showcasing the win and fail purchases of last season, in hopes of not making similar mistakes in the future. Any interest in seeing that?

Anyway, this felt like a very long Week in Review post, hope you all  enjoyed the herb farm pictures. Speaking of pictures, are we all friends on Instagram? We should be! I’m at @fashionschlub…and if you’re interested in more life and sunsets and animals, you can follow me at @bettyerainwaterphotography.

Hope everyone has a peaceful and joyful week!

xoxo Bettye

More Gratitude

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Wow, it was fun doing a shoot again! I’ve had messages from several people saying not to worry about the blog and just focus on feeling better, but the blog is a really good distraction for me right now. I can’t just think about CANCER all the time – and believe me, it’s always trying to take the top position in my brain. I’m guessing the time may come during treatment when I. Just. Can’t. But for now, while I can…I love doing it.

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But I *am* lucky to have people who care enough to tell me to take care of myself. So…I’m feeling a gratitude post coming on!

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I’m SO grateful to all the wonderful people who have been there for me – emotionally, physically, transportationally 🙂 I generally live a pretty solitary life and I always worried about when I got “old and sick” (not that this is THAT, but…) how I was going to manage on my own…but people haven’t even made me have to figure that out. They’ve just been right there for me every step of the way. And that’s been really nice.

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I’m grateful that I had a pretty quick and easy recovery from surgery. Sure, I had a couple bad days in there, but for the most part I think it went pretty well. A month out and I’m feeling pretty much normal. The doctor initially didn’t want me to go back to work for six weeks! But this is my second week back and it’s all good.

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I’m grateful I found a dress to fit, ha! All my swelling has gone down, 20 pounds worth, gah, and I’m back in my normal clothes. This is a Gwynnie Bee dress, it’s cute, right?? I wanted something a little bright and springy and this definitely fit the bill. I love a dress with a slip layer and an outer layer like this – it keeps everything looking very smooth. It’s sleeveless but down by the water last night it was breezy and chilly so I wore it with this longline cardigan and some new chestnutty-brown flats. I have to see if I can pull out the insole and replace it with an arch support insert because otherwise GAHHHH!!!

I’m SO grateful that spring finally seems to be here! I feel I handle the cold less and less well every year and I’ve been really anxious for some COMFORTABLE (not HOT, but…) weather. And this week has been that – comfortable – and I’m appreciating the heck out of it. I’m grateful to be able to wear dresses with bare legs! Tights are the devil’s work.

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I’m grateful to My Friend Who Shall Remain Nameless for taking these pictures. I’m grateful for so many scenic places on Long Island to shoot!

I’m grateful that I’m remembering to be grateful. That has not always been my strong suit, so…yeah. If nothing else good comes out of all this, at least there’s that.

What I’m Wearing:

Week in Review: Week 59

It is a sunny but still windy and cool day here on Long Island. I have a day filled with running errands, cleaning out my disgusting car, taking the dog (and me) somewhere for a walk and change of scenery, then a quiet evening with a movie and early to bed. The best news this week, I doubt I’ve ever mentioned my ^&%#! insomnia here, but it’s been EVEN worse since the surgery – as though things have shifted around and when I lay down something presses on my bladder and makes the worst ache if I do not wake up immediately to get up and pee. And getting in and out of bed is still enough of a process that it wakes me up even more, UGH. But the GOOD NEWS part is that just two nights ago I was actually able to lay for a little bit on my side again! I’m a side sleeper, but I’ve only been able to be on my back since the surgery 3½ weeks ago, so WHAT a relief to finally have a little bit of normalcy and comfort. In Medical-Land, so many things seem to take so much longer to return to normal than you think they should. So Yay.

I went back to work this week for a full week. My wonderful officemates Tori and Jen had decorated my desk with balloons and banners and there was a little “nest” of goodies on my desk – they are just the sweetest. I’m so fortunate to get to spend my work days with them.

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While I’m not feeling especially energetic, I’m powering through and trying to walk every other day. My baby step regimen is:

Week 1: Walk 5 minutes out and 5 minutes back for a total of 10 minutes

Week 2: Walk 6 minutes out and 6 minutes back for a total of 12 minutes

Week 3: Walk 7 minutes out and 7 minutes back for a total of 14 minutes

You get the picture. Monday will start Week 3. I’m very slowly working up to walks of 20 then 30 minutes. I may back-slide during chemo, I’ll just have to wait and see how I feel then. But at least it’s a schedule that I’m adhering to. And I am walking S-L-O-O-O-W. My heel still hurts and that keeps me slowed down as well. Caleb likes the walks when we’re somewhere he can be offlead and sniff around at his leisure. In his old age he’s gone pretty deaf so I can’t let him offlead when we’re anywhere near anything, like a road or people or other dogs, cuz he just doesn’t hear me calling him. And I think there’s a little senility as he just sort of wanders off and then loses track of where I am. Because it doesn’t seem to occur to him to turn his head to the right or left to look for me. It’s sad to watch someone you love get old.

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A dear friend did this cross-stitch for me, “What Cancer Cannot Do.” That was a lovely surprise to get in the mail this week.

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Caleb: Master of His Domain. He needs a good bath and haircut. But he loves the big tuffet that his Uncle Russell got for him.

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And just to keep this at least a LITTLE fashiony…here is a try-on of an outfit I ordered from Old Navy…that sadly will be going back. Old Navy plus size sizing is so all-over-the-place. Sometimes things are ginormous on me and sometimes they’re way too snug. These are really soft rayon blush cropped pants in a 3x and I couldn’t even zip them up. Part of that could be a little vestigial swelling still left around my abdomen and hips, though they’re feeling pretty normal again. And the top was also snug around the same area, while too loose in the bust. I’m really short on warm weather outfits and the flurry of ordering and returning continues until I hit on a couple wins.

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My niece sent me this book by Sarah Addison Allen – has anyone read it?

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This is a pic my daughter just sent me from while she was here and walked down a bit of beach to see the sunset. It’s just a nice memory of being with her and being OUTSIDE after being cooped up in the hospital for so long.

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So, in other news, I have had both the radiation and chemo consults with my “original” team – the doctors associated with my surgeon’s office. On Monday I have a consult scheduled with Memorial Sloan-Kettering Cancer Center to see what, if anything, they would do differently…and then I have to make the decision of who to go with so we can get this show on the road. It’s hard to make the decision because I can already see that I will not necessarily be comparing apples to apples. So wish me luck!

And Great News – I’m actually doing a photoshoot tomorrow! Yippee. Will feel good to be “blog productive” again. So you can look forward to a springy outfit post later this week.

Thanks for all your comments, emails, and kind words – I really appreciate them.

Weeks in Review: 54-58

Yeah, one of these days I’ll get back on track with regular weekly Week in Reviews. This year continues to just be Crazytown. I can’t believe it is April 1…and yet it is. February and March are dead to me. But let’s get caught up and hope for a better week!

I spent 15 days in the hospital between February & March. This was surreal and not so much fun…

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Except for…gifties and flowers and balloons and visits…

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…and a daughter who snuck in special treats…

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so we could have a little St. Patrick’s Day fun.

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When I was FINALLY released I discovered she (daughter) had gotten me a nice new bed set…what a pleasure to sleep in after the scratchy hospital sheets.

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I had some packages waiting at home for me – things I’d ordered before all this nonsense began. I’d been excited for this cute grey and white striped tee dress from Lane Bryant but it was kind of gigundo and I’ve returned it. Still on the lookout for soft comfy clothes for spring and summer.

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As soon as I was up to a little outing we drove to a nearby beach for a short sunset stroll. I’d missed seeing this.

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Janey has been thoroughly enjoying my surgery recovery time. For many days in a row I was just horizontal on the sofa from morning til night. Having sofa company pleased her no end.

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I had some more unpleasant news from the doctor this past week when they got the pathology report from my surgery. In a nutshell, they did *not* get all the cancer out with the hysterectomy. I have now been diagnosed with Stage 3 Uterine cancer and they’re recommending radiation and then chemotherapy. I’m getting a second opinion but I’m not expecting to hear anything radically different from the original recommendation. This doesn’t feel like my life. And yet….

Work sent me these flowers that day. And yes, Work Family, I COULD use a drink.

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The doctor cleared me for work and driving so I went and got a haircut. I went to a nutritionist to hear about things to eat and/or avoid during chemo.

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And yesterday I had the nicest day I’ve had in ages…just being NORMAL…a wonderful friend picked me up for a drive to the ocean…and in spite of the wind and rain, it was just so nice to be out of the apartment, not doing anything health related. I really value a day like that.

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So. I go back to work Monday. I think I worked 9 days in February (between snow days, the Maine adventure, winter break and being in the hospital) and like 2 days in March. I’ll have a couple normalish weeks now and then I start my treatments. So I’ll be here when I can. I miss the blog. I miss planning outfit posts. But against my will (ha) other things are pushing their way to the top of the list.

Hope you all have a great week.

PS – I just realized it’s April Fool’s Day. I wish this post was an April Fool’s joke…but it’s not.

xoxo Bettye

You Deserve the Very Best…

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I look at these pictures taken 3 weeks ago and it seems like a lifetime ago. All I see when I look at them is TIRED. A TIRED woman. And I *was* tired. I’d been tired for some time, but always attributed it to my weight or my age or just generally being out of shape. And I pushed through…because that’s what you do. It’s what we all do. We just keep going, pushing ourselves, til we can’t go no mo.

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It was the day after this shoot that I ended up in the Emergency Room and the next day admitted to the hospital. For five days. And then another 10 days the very next week. The cancer diagnosis really surprised me. “I’m just tired.” Now I’m tired from the surgery – a hysterectomy 6 days ago. Still waiting on the pathology from the surgery but I’m counting on it being positive. In the meantime I’m recovering. I’m back at home, my daughter is here helping me. Life doesn’t feel normal again yet, but it will.

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My body doesn’t feel normal yet, either. When I look down, my stomach seems like it shifted lower. Like I used to feel pregnant w a basketball right under my boobs…and now the basketball has dropped. So the biggest part of my stomach is in a new place. And that feels weird. I didn’t expect that. I have to get used to my body again.

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I’ve started walking. BABY baby steps. 5 minutes out then five minutes back. That’s all I can do just yet. But I’ll feel stronger as I heal from the surgery and eventually I’ll be able to walk 10 minutes out and back. And maybe my body will change a little more. Because I’m tired of my body making me feel tired. This isn’t me hating on my body. This is me LOVING on me and my body and wanting both of us to FEEL BETTER. We deserve that, my body and I.

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We deserve the very best.

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What I’m Wearing:

Looking Forward…And Gratitude


A little different kind of post today. Again, it’s just “here’s what I did this week.” 

I was diagnosed with uterine cancer (not really a soft way to say something like that). There are some little (figurative) side bumps but overall I am told that if you have to have cancer, uterine is a good one to have. Theoretically, this afternoon’s total hysterectomy will remove all the cancer and I’ll be good as new – better even cuz No More Bleeding. But…they’ll have a better picture of everything once they open me up. 

I’ve spent 11 days in the hospital now between my two visits…and I have to tell you, your world can get Very Small Very Fast. In here you lose so much control. There’s no privacy, you live eat sleep (and shower!) on THEIR schedule. So I’m so so grateful for family friends and coworkers who reach out to me daily, who visit and bring distracting gifts and snacks and stories from “the outside.” I’m grateful to my ex and his family for taking care of Caleb all this time. I’m grateful to my daughter who is flying home to take care of me when I get out of the hospital. I’m grateful to my work for being so adamant that I take care of myself even though this was the worst possible time for me to not be there.

I’m grateful for kind nurses who dig thru linens to find me a soft gown, or who apologize when sticking me for blood One More Time. I’m grateful to have a window beside me. 

I’m grateful to have the “good” cancer and to have a dr with all kinds of fancy titles and experience and recommendations.

I’m grateful to have people who love me. 

And I am looking forward to going HOME soon…and feeling the air and sleeping in my own bed with the lights out…and to leaving this bizarro winter behind me and moving into the rebirth of spring and new life. 

I’m feeling a little adventurous…like I want to sew flowers all over a dress…or just wear something a little crazy! You’ll just have to keep reading to see what I’m going to do next.

Thanks for hanging around in my absence, friends. 

xoxo Bettye